Information for Families

General information for patients and families

• GeneClinics Summary - Detailed description of the disease, clinical diagnosis, management, genetic counseling and other resources.

Organizations that support HHT families

• HHT Foundation International, Inc - Nonprofit foundation that supports education and research to benefit HHT families.
• Telangiectasia Self Help Group, England - Support from HHT families in England and information by leading British clinicians.

Online discussion groups

• Yahoo HHT Group - Public discussion group for anyone interested in discussing HHT.